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Re: Alone [Re: megs927] #409593
11/24/14 06:26 PM
11/24/14 06:26 PM
Joined: Jun 2013
Posts: 16
IL, USA
M
megs927 Offline OP
Junior Member
megs927  Offline OP
Junior Member
M
Joined: Jun 2013
Posts: 16
IL, USA
Things continue to worsen. I couldn't get out of bed today. I feel like my prayers aren't heard or God just doesn't care about me...

Re: Alone [Re: megs927] #409596
11/24/14 08:24 PM
11/24/14 08:24 PM
Joined: Nov 2001
Posts: 10,930
Irondale,AL
Pani Rose Offline
Member
Pani Rose  Offline
Member
Joined: Nov 2001
Posts: 10,930
Irondale,AL
Jumping in here, by chance do your problems involve nerve distinction or injury?

Re: Alone [Re: Pani Rose] #409619
11/26/14 12:21 PM
11/26/14 12:21 PM
Joined: Nov 2001
Posts: 26,108
Canada
Orthodox Catholic Offline
Member
Orthodox Catholic  Offline
Member
Joined: Nov 2001
Posts: 26,108
Canada
Dear Meg,

You can't fight this alone - you need direct support from others.

Is there anything we/I can do?

Alex

Re: Alone [Re: megs927] #409626
11/26/14 08:52 PM
11/26/14 08:52 PM
Joined: Nov 2001
Posts: 10,930
Irondale,AL
Pani Rose Offline
Member
Pani Rose  Offline
Member
Joined: Nov 2001
Posts: 10,930
Irondale,AL
If you are on FB and you have nerve problems, nerve injury, etc. There is an excellent page on there called Neuronauts. It is an excellent page of support, understanding, and knowledge. https://m.facebook.com/home.php?ref=bookmark&app_id=4748854339#!/groups/105545836281882?ref=bookmark&notif_t=group_comment_reply. I'm on there.

Re: Alone [Re: megs927] #409627
11/27/14 05:12 AM
11/27/14 05:12 AM
Joined: Nov 2001
Posts: 6,351
Virginia!
Administrator Offline

John
Administrator  Offline

John
Member
Joined: Nov 2001
Posts: 6,351
Virginia!
Meg,

Please know that you are in our prayers.

Take some action. Speak with your pastor and tell him about your challenges. He will either be able to provide you with some guidance or point you to someone who can provide assistance.

Best wishes,
John

Re: Alone [Re: megs927] #409635
11/27/14 01:34 PM
11/27/14 01:34 PM
Joined: Jun 2013
Posts: 16
IL, USA
M
megs927 Offline OP
Junior Member
megs927  Offline OP
Junior Member
M
Joined: Jun 2013
Posts: 16
IL, USA
It is something neurological. That's the only answer I've been able to get. I don't know what sort of support is available in any of the things I'm dealing with. Believe me, I try to talk to others for support. I either get ignored, shut out, told "that really sucks," etc. I'm at a point I don't even know who to reach out to anymore because the people I trust hurt me so bad. This week is no exception, as a person who knew best the things I am dealing with called me to talk like he has daily for months....then disappeared without explanation. It was a happy conversation discussing seeing each other on Sunday....no message or call I make is answered. I hurt in every sense of the word...I pray and pray and pray. At this point I need nothing short of a miracle.

Re: Alone [Re: megs927] #409638
11/27/14 03:44 PM
11/27/14 03:44 PM
Joined: Nov 2001
Posts: 10,930
Irondale,AL
Pani Rose Offline
Member
Pani Rose  Offline
Member
Joined: Nov 2001
Posts: 10,930
Irondale,AL
You sounds like what so many go through. I see it over and over again on the NN page. I have RSD/CRPS with Dystonic Spasms. It drives me nuts, I have other problems along with it, after 30 years of fighting with it, well basically life is just an adventure.

Seriously, if you are on there, they will be great support. Sadly, what you just shared, happens to many.

Re: Alone [Re: megs927] #409640
11/27/14 06:19 PM
11/27/14 06:19 PM
Joined: Jun 2013
Posts: 16
IL, USA
M
megs927 Offline OP
Junior Member
megs927  Offline OP
Junior Member
M
Joined: Jun 2013
Posts: 16
IL, USA
Thank you. I'll go add it

Re: Alone [Re: megs927] #409644
11/28/14 08:49 AM
11/28/14 08:49 AM
Joined: Nov 2001
Posts: 10,930
Irondale,AL
Pani Rose Offline
Member
Pani Rose  Offline
Member
Joined: Nov 2001
Posts: 10,930
Irondale,AL
Megs you seem to be having a lot of problems many people in there have. For the life of me I don't understand why families walk away from people with neurological problems. I have never faced that, yet there are many times, I feel very alone.

Many of us in there have Dystonia. After CP, and Parkinson's, it is the third most common movement disorder in the USA. however, it has so many vArried componets, people don't realize it is all the same.

Anyway, I just use my name in there. God bless you, hope it helps!

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